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In depth, proven to work, and scientifically backed things that you can do to up your recovery game! The actual things I have done to take me from no feeling/movement below my belly button for 3 years to walking down the aisle at my wedding and feeling below my belly button.
let’s Break the paralysis recovery stigma
There’s a stigma around paralysis and spinal cord injury (SCI) recovery for a few key reasons, and it’s deeply rooted in outdated medical beliefs, societal perceptions, and even the way disability advocacy is framed.
1. Outdated Medical Beliefs
Many doctors still tell SCI patients that "you’ll never walk again" because traditional medical education has emphasized that nerves in the spinal cord don’t regenerate.
While recovery science is evolving, the older "no hope" mindset still lingers in the medical community.
2. Societal Perceptions of Disability
Some people believe that accepting life in a wheelchair means embracing disability, while pursuing recovery can be seen as "denying" it.
There’s a divide between those who fully embrace wheelchair life and those who push for recovery, leading to tension even within the disability community.
3. Gatekeeping in the Disability Community
Some wheelchair users feel that discussions about recovery imply that life in a chair is something to "escape" rather than embrace.
This has led to a stigma where talking about recovery can feel like stepping on eggshells, even though everyone’s journey is different.
4. Lack of Awareness About Recovery Options
Many people don’t know about cutting-edge rehab techniques, electrical stimulation, or activity-based therapy, so they assume recovery is impossible.
Insurance companies also contribute to this by only covering basic rehabilitation, reinforcing the idea that significant recovery isn’t an option.
5. Inspirational Tropes & Misinformation
The media either portrays SCI recovery as miraculous (e.g., someone suddenly standing up and walking) or completely impossible, with no in-between.
This creates false hope for some and discourages others from trying, fueling more stigma around what’s "realistic."
It’s a complicated issue, but at the end of the day, recovery should be an option without shame—just like wheelchair users should be empowered to live full lives without pressure to recover. Everyone’s journey is different, and both paths deserve respect.
What you’ll learn